frozensprouts Posted June 12, 2012 Share Posted June 12, 2012 My 14 year old daughter was diagnosed with fibromyalgia a few years ago. She also has mild depression, an anxiety disorder and asperger's syndrome. She takes lyrica to help with the fibromyalgia, and Elavil ( amitryptaline) to help with her poor sleep/anxiety/depression) as well as melatonin to help regulate her poor sleep cycles ( both aspergers and fibromylagia can cause poor sleep with little REM/ delta wave sleep cycles) She sees our family doctor, a team of pain specialists at the nearest children's hospital, a psychologist and a physiotherapist. Right now, I'm trying to help her learn to relax ( bought her a book about Bhudism, which she is interested in, and I thought there may be somethings in there that will help her deal with stress )... wondering if anyone may have some helpful advice about how to help her. She's just a kid, and I hate to see her so weighed own by all of this... Link to post Share on other sites
seren Posted June 21, 2012 Share Posted June 21, 2012 Hi Frozen, poor daughter, I have Fibromyalgia as one of my Lupus gifts!! The pain is truly awful and as for the lack of sleep, tis one of the reasons I am on LS so much. I tried all the drugs, Gabapenting, Amytriptiline, Tramadol, etc etc, now I take 30/500 Co codamol when it gets too bad. trouble with fibro is that the muscles hurt so much just light touch hurts. Exercising can be so difficult with the fatigue thing and can often make it worse. I get H to give me a very gentle massage using oils, not sure how your daughter would take to this. try a nice warm scented bath followed by a lavender oil massage, but gentle, more rubbing and smoothing that kneading. make her bedroom relaxing, low lights and no telly, milky bedtime drink, it might help her to relax more. swimming and water aerobics are good too as the water will help with the pain. I am waiting for hydrotherapy sessions and have had a McTimmoney chiropractor for a while, not ordinary chiro, they are way too heavy handed. Good sleep plays a huge part in helping fibro, but it elludes many of us. Hope she finds a way to help her, it is a god awful illness and little understood. Oh and I also us a heat pad. Seren x Link to post Share on other sites
FitChick Posted June 21, 2012 Share Posted June 21, 2012 You might find this multi-part by Dr. Marc Darrow helpful. I listen to him on the radio most Saturdays and he knows his stuff. He uses integrative therapies and teaches other doctors at UCLA Medical Center. He keeps up to date with the latest research, unlike most doctors who just shove med samples across the desk. At his recommendation, my aunt who had a lot of joint pain and said she "hurt all over" switched to an anti-inflammatory diet and no longer takes pain pills. Link to post Share on other sites
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