amkxoxo Posted August 11, 2015 Share Posted August 11, 2015 I am 23 years old and I never feel good anymore. It all started two years ago. I was healthy, active, and felt pretty good most of the time. I sustained an injury while working out. I broke a bone. The symptoms started getting intense fast through my recovery. They weren't classic symptoms associated with a broken bone. I went to a doctor who wanted to do massive surgery on me, and told me the symptoms were fine. A year later, a different doctor, and a healed bone, I was diagnosed with a rare condition with my nervous system. The broken bone triggered this rare condition, which treated quickly can sometimes be totally eliminated. Unfortunately my case was unique because I wasn't treated right away because my original doctor told me I was fine and insisted on surgery, which I later found out can make this rare condition debilitating. But I sis start getting treatment in a decent amount of time, where the symptoms have sort of plateaued. I am lucky. I have still have symptoms like temperature control issues, centralized random pain, and sensitivity to things touching my skin, and sensitivity to wind and the weather. Luckily, my symptoms haven't progressed and have not gotten worse. I can handle it pretty well. I have been avoiding medicine because I don't want to be poked and prodded then to be continually trying different medications. I handle it and do pretty well on my own, without treatment. I work out, hangout with my friends, and work a full time job. I always say that the day I can't do that is the day I get poked and prodded. After my injury healed I felt pretty decent. I noticed I would get tired more often, but it wasn't too noticeable when it came to me completing everyday activities. Now two years later, I should be healthy, but I am not. However, I do not think this has anything to do with my medical condition. A few months ago I felt like I was getting a head cold. My doctor put me on an antibiotic for a couple weeks. I started feeling better on them and had hope it would clear. As soon as I ended the medication, all the symptoms came back and I felt horrible again. He put me back on the medication claiming many people need it for more time to truly get all the infection out. I went back on it and started feeling better. I was on antibiotics for over a month, that caused back to back yeast infections because it was killing everything bacterial in me. I kept going through it, because I felt better. Towards the end of the antibiotic I started feeling sick again. I didn't understand it. Severe body aches, tiredness, and fatigue. I didn't know what was wrong. Days later I had all those symptoms, a sore throat, and a fever. I couldn't work. I was bedridden. I went to my doctor and they did a ton of blood work. He thought I might have lyme disease or mono. I got better and better everyday and all the tests came back negative. He said it must have been a virus. Its been about three weeks since the virus and I feel horrible almost everyday. I am tired, have a slight sore throat, and horrible sinus pressure and pain. I am so tired and have no energy. I don't work out. I can barely get through a day of work. I am constantly on edge which makes me a bit rude because I do not feel well. All I want to do after work is sleep and eat. I feel myself eating way more than usual because I need energy. I can see myself gaining weight and I hate it. I enjoy exercising, but I don't want to. I feel like I can't do it. Even my mother seems to be able to move more than me these days. I feel like my friends have more energy than me and I just want to be able to do things with them. I feel myself being agitated towards people sometimes and I don't want to be this way. I am just getting so sick of this. I started taking allergy medication, thinking maybe its severe allergies. It hasn't started working yet, and it is supposed to work right away. I don't want to go back to my doctor since he already took blood work and it all came back normal. I don't want to go through that again. I just want to feel better. I am sitting here almost in tears because I just want to feel good again. I want to go to the gym and have energy. I can't take this. I don't know what to do. I feel myself constantly taking medicine. Ibuprofen to help the sore throat and sinus pressure, then allergy medication, and sometimes a decongestant. I feel like I rely on these medicines to live my life. I feel like those people addicted to prescription pills, but mine aren't addictive and they are low brow medications. At 23, I shouldn't have to take Advil everyday. My mother, who is a nurse is worried about me. She tells me to stop taking the Ibuprofen everyday, so I try to, but I can barely get through a work day, because I am miserable. Then as soon as I stop taking the Advil and suck it up, I get my period and need it for my cramps. It never ends. There have been months where I take Ibuprofen everyday for about 3 weeks. Its ridiculous. I am afraid my body will build up an immunity to it and it won't work anymore. I don't know what to do anymore. I just want to feel good. Link to post Share on other sites
Satu Posted August 11, 2015 Share Posted August 11, 2015 Even though you don't want to, I think you should continue working with your doctors until they come up with a conclusive diagnosis, and a rational treatment path for you. Also bear in mind that depression is not uncommon amongst people who suffer chronic illness. I'm not saying that you are suffering from depression, just that you could be. Go back to your doctor. Take care. 2 Link to post Share on other sites
sportygirl89 Posted August 11, 2015 Share Posted August 11, 2015 I know it might be strange. But have you been outside at all? I couldn't hardly move at all. I got diagnosed with Lyme Disease. The doctors never wanted to diagnose me with it. I had shooting pain with alcohol (they tested me for lymphoma and all that other stuff). People literally thought I was crazy for having it. Its two years later and I feel mostly good. Some days I do get tired. But I think that's just how life will be for me. I'm ultimately symptom free. I am 25 by the way. When no one believes you it sucks. Some people have had Lyme Disease for years. Link to post Share on other sites
Author amkxoxo Posted August 11, 2015 Author Share Posted August 11, 2015 I was put on the Lyme Disease preventative medication. When they did the blood test it came back negative, so I stopped taking the medication. I'm figuring since the test came back negative, that there is no way I could have Lyme. I work in an office inside all day and when I go home, I'm inside cooking dinner and by the time I am done, its usually getting dark outside for me to go outside. I do go out occasionally on my lunch breaks for walks around my building. And sometimes at night I will go out for walks. I just went on a vacation with my family, that was outside a good 80% of the time. I still felt miserable, but made the best of it because of my vacation and we were having a great time. Link to post Share on other sites
Arieswoman Posted August 11, 2015 Share Posted August 11, 2015 Hi amkxoxo, I am sorry you are suffering like this. What is the diagnosis of your condition? I would suspect Complex Regional Pain Syndrome. I work in healthcare but I can't suggest anything except to work with your physician to help alleviate these complex symptoms. I am sorry I can't be of more help. Link to post Share on other sites
Author amkxoxo Posted August 11, 2015 Author Share Posted August 11, 2015 Yes, I was diagnosed with RSD, or complex regional. Mine is very mild though. The symptoms I am having now are not that of RSD. I think this is something else. I say I am going to go walking after work, or go to the fitness center, but when I get home and make dinner I just can't wait to sit down. I feel fatigued. I sit in an office all day, so I shouldn't be tired. Link to post Share on other sites
sportygirl89 Posted August 11, 2015 Share Posted August 11, 2015 I was put on the Lyme Disease preventative medication. When they did the blood test it came back negative, so I stopped taking the medication. I'm figuring since the test came back negative, that there is no way I could have Lyme. I work in an office inside all day and when I go home, I'm inside cooking dinner and by the time I am done, its usually getting dark outside for me to go outside. I do go out occasionally on my lunch breaks for walks around my building. And sometimes at night I will go out for walks. I just went on a vacation with my family, that was outside a good 80% of the time. I still felt miserable, but made the best of it because of my vacation and we were having a great time. Certain Lyme disease tests can come back as false negative. They generally do a second test for it. Link to post Share on other sites
Arieswoman Posted August 11, 2015 Share Posted August 11, 2015 amkxoxo, If you are not happy with your treatment regime, or are having distressing symptoms, please go back to your physician. You are asking questions that I believe are outside the scope of people here. With the best will in the world, no-one here has the ability to deal with your situation. I'm sorry x 1 Link to post Share on other sites
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